also people should keep in mind that sometimes when an artist says “doodle" what they mean is "stress-free art”. that doesn’t necessarily mean that the “doodle” they made is something that they didn’t work hard at or didn’t spend a long time on. some people get really out of…
my dad died from ALS when i was 3 years old. he was 36. my mom was 33. that was 30 years ago. now i’m the same age my mom was when my dad died. and there is still no cure for ALS.
this is what happens when you have ALS: your muscles slowly stop working, one part at a time. for my dad, first he couldn’t use one of his hands. then his arm. then the other arm. then he couldn’t walk. then he couldn’t stand up. then he couldn’t talk. then he couldn’t swallow. then he couldn’t breathe. then he was dead.
this all took about two years. he was diagnosed when i was about one year old. the only memories i have about my dad are of an inert body in a wheelchair or lying in a bed with a bunch of tubes stuck into it. as i was learning to talk, he was losing the ability to speak. as i was learning to walk, he stopped being able to move. my mom often had to choose between who she was going to help go to the bathroom at any given moment: her husband or her toddler.
after my dad died, my mom took over the philadelphia chapter of the ALS association. it consisted of a shoebox full of notecards with names on it. now it is a multi-million dollar organization with a large staff. she is still in charge. my mom is one of the most amazing people on the planet, basically.
these past couple weeks have been mind-boggling. i have openly wept watching so many of these videos. i still don’t completely get how all of this has happened, but now we live in a world in which lil wayne and taylor swift and oprah and justin timberlake and weird al and bill gates talk about ALS. my mom just emailed me this sentence: “lebron james ice bucket challenge.” i mean, IS THIS REAL LIFE?! i just keep saying over and over: holy shit. holy shit. holy shit.
so far, it has raised over 10 million dollars… and counting. my mom has spent every single day of her life for the past three decades trying to get this kind of attention and funds for this disease.
i don’t care if it’s a stupid gimmick. i don’t care if people are just doing this because it’s trendy or because they want pats on the back. i don’t care if it’s the new harlem shake. i don’t care if for the rest of my life, when i talk about ALS, i have to say “you know, the ice bucket disease.”
please, everybody, please keep pouring buckets of ice over your heads. please keep donating money. please keep talking about this.
my mom’s chapter:
p.s. the only reason i haven’t done my own ice bucket challenge yet is because i wanted to do it with my mom. we’re seeing each other next week, so it will happen then, i promise.
Think about this next time you think it’s just a stupid gimick
Georgian First Grader Beaten and Sexually Assaulted by Male Classmates…School Says Boys Just “Rough Housing”
Valdosta - Three first grade boys kept a female classmate outside after recess by hiding in the woods, pushing her face first into the ground. The victim, whose name is being withheld, has suffered scarring to the right side of her face from broken tree branches and rocks that she was allegedly assaulted with both physically and sexually.
The victim was able to escape the male classmates after fifteen minutes of torture, running into a fifth grade classroom and alerting a teacher of what had happened. The principle of the elementary school said he had a “man to man” talk with the boys and their parents, giving them two days of suspension. He neglected calling the local authorities claiming “it did not seem like a police matter, just simple rough housing gone a little too far”.
The parents of the victim are looking to press charges on the boys for sexual and physical assault, as well as a possible law suit against the school district. District superintendent was not available for comment.
This is called rape culture you guys. The girl was 7 years old and they called it “rough housing” between boys.
Please boost this post! People NEED to hear about this.